French‐style genetics v. 2.0: The “e‐CohortE” project - Université de Versailles Saint-Quentin-en-Yvelines Access content directly
Journal Articles Clinical Genetics Year : 2019

French‐style genetics v. 2.0: The “e‐CohortE” project

Abstract

In the digital age, a genetics cohort has become much more than a simple means ofdetermining the cause of a disease. Two-sided markets, of which 23andMe, AncestryDNA and MyHeritage are the best known, have showed this perfectly over the last fewyears: a cohort has become a means of producing massive amounts of data for medical,scientific and commercial exploitation, and for genetic use in particular. French law doesnot currently allow these foreign private companies to develop on French national terri-tory and also forbids the creation of similar entities in France. However, at least in the-ory, this same law does not preclude the creation of new types of cohorts in Franceinspired by the success of two-sided markets but retaining features specific to theFrench healthcare management system. We propose an optimal solution for France, forgenomic studies associated with multi-subject questionnaires, still purely theoretical forthe moment: the development, with no need for any change in the law, of France's ownversion of“Genetics v.2.0”:“e-CohortE.”
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hal-04512786 , version 1 (20-03-2024)

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Henri‐corto Stoeklé, Marc Bollet, Aurélie Cobat, Oudy Ch Bloch, Jérôme Flatot, et al.. French‐style genetics v. 2.0: The “e‐CohortE” project. Clinical Genetics, 2019, 96, pp.330 - 340. ⟨10.1111/cge.13595⟩. ⟨hal-04512786⟩
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